I’ve put off writing this for a long time – several weeks in fact. It’s not because I’m uncomfortable talking about it but because I’m sick of hearing about it and talking about it and thinking about it. I’m writing this only because I’d like to start a conversation that comes from the people and not from the doctors. That’s not to say that I don’t believe what the doctors have to say but because I don’t believe they are talking to each other about what they are hearing from us, the patients. Maybe they are, but too many times in the past couple months I’ve heard, “My doctor has never heard of this,” or “My doctor says it’s not a symptom,” or “My doctor looks at me like I’m crazy.”
We’re not crazy. We’re just hurting, confused, and looking for answers.
Maybe if we can start a conversation about what we’re experiencing, we can find the answers that everyone needs and hopes for. I know that’s my hope and also my prayer.Read more